Tuesday, 22 December 2009
Wednesday, 20 May 2009
Illness forces Emily to quit town council
The 30-year-old artist mum was the youngest person on the town council when she reluctantly handed in her resignation last week.
Faced with suffering daily seizures which left her exhausted, she decided she had no choice but to stand down.
Emily said: "It was a very difficult decision for me. I wanted to help the parents and children and disabled people, but it was so frustrating not being able to fit in with the timing of the council meetings.
"I am quite passionate about supporting people in the community and representing them and it became so frustrating not being able to do so."
Emily has suffered from epilepsy since she was 10 years old, but over the last two years the nature of her illness has changed — and drugs prescribed for her either left her 'hyper' and nervous or turned her into a depressive.
She said: "My epilepsy has changed. It never used to be like this. I used to have a few complex partial seizures a month. Sometimes now I am having three or four a week. I am having one or two simple partial seizures a day."
She said a simple partial seizure leave her staring into space for a few minutes while a complex partial seizure leaves her disorientated without a grasp on reality which can last for up to 30 minutes. All the seizures leave her exhausted.
Emily, who lives with her husband Steve and two children Misha, eight, and Poppy, four, in Culverdale, first won a seat on Totnes Town Council in November 2002.
But three years later she and husband Steve, who was also a town councillor, both resigned in protest over the way the council was being run.
Then two years later they both stood again in the 2007 May elections and Emily pipped her own husband at the post by just one vote to win back her seat.
Emily and Steve invented the board game Buddhawheel, a game based on the Buddhist wheel of life involving players working their way up the reincarnation ladder, which has sold around the country and abroad.
Emily is a Bhuddist and said her meditation has helped her cope with her epilepsy.
"I am not freaked out by what is happening where I used to be before I had experience with meditation," she said.
Totnes Town Council is now faced with advertising the vacant seat left by Emily's resignation.
If enough local electors demand there is a by-election the council will be forced to hold one.
If that does not happen the town councillors will have the option of co-opting a new councillor.
Saturday, 2 May 2009
Monday, 27 April 2009
Done more research about creativity, epilepsy and watching the mind and found detail about Flaubert's epilepsy and his writing about it:....
The onset of his epileptic attacks allowed Flaubert to abandon his education at law school and, in many ways, created a space for Flaubert to live a life of the imagination.
He was working away at studying for his law examinations, had taken a brief break from his studies and returned to Rouen to visit with his family. While home, his older brother Achille and he had gone on a trip to look into the possibility of buying a cottage. On that ride in the dark which is unimaginable to us now because we live in a world that is perpetually filled with light pollution, Flaubert had his first attack of epilepsy. His falling allowed him to return to a life of reverie and, although there were innumerable fees to be paid to the gods of modern day medicine, his time became his own.
But what had happened? What had transpired in his mind? Later, he would write to his lover, Louise Colet, in a letter the following:
"Each attack was like a hemorrhage of the nervous system. Seminal losses from the pictorial faculty of the brain, a hundred thousand images cavorting at once in a kind of fireworks. It was a snatching of the soul from the body, excruciating. (I am convinced I died several times.) But what constitutes the personality, the rational essence, was present throughout; had it not been, the suffering would have been for nothing, for I would have been purely passive, whereas I was always conscious even when I could no longer speak. Thus my soul was turned back entirely on itself, like a hedgehog wounding itself with its own quills."
The fireworks of the self caught in temporal agony. The space of the self becomes expansive and vast. I understand this particular possibility of the self because it resonates with what I've felt in the past. The agony of seeing past the limit. The limit of the agony past seeing. The seeing limit of the past agony. There is a space of consequent understanding here which belies any simple attempt to map the mind.
Saturday, 25 April 2009
I have have temporal lobe epliepsy since 10 yrs old and started meditating at 16. I have been a practicing buddhist for 14yrs now and am very interested in meeting others that apply mediataion to their seizures. I find that as opposed to being a healing exercise for my seizures, my meditiation helps me to understand and work with the subtle minds that surface during a seizure.
I have found mostly negative outlook on epilepsy from buddhist who dont know much about it or the mind, and also from epileptics whose main aim seems to stop seizure through many medication experiments. I have epliepsy that is hard to treat and as such my epileptic state has become part of my spiritual path. Someone on a Buddhist forum mentioned that Buddha for example cant have had epilepsy because he was a blessed being, well they miss the point of a Buddha entirely...
Buddhas start as normal human beings, and from that point (hindered by an as-sortment of the sorts of things humans have to deal with e.g. epilepsy) they work with their obstructions gaining a deeper and deeper knowledge of them so, knowing their true enemy of delusion, they can become released from it and therefore help others who are also 'drowning in samsara'.
A true Buddhist would see nothing as a complete dead end to their path, even in the most difficult conditions. My meditation smoothes my seizures, i think when i am most successful i become one with them and gain much insight.